xmas 2013

xmas 2013

Tuesday, October 19, 2010

Another one of those days

A little longer in between posts than usual. Just when you think it can't get any busier, it does. My parents have been here this past week. They are a HUGE help and it has been so awesome that they've taken big brother out and taken care of kids and household duties for me. Yet somehow, I've managed to more than fill the time. There is a lot to do with funding (classes, meetings, calls), volunteering at school, observing another family, parent orientation and training, training, training, parent therapy, parent therapy, parent therapy. Rinse. Repeat.

On the whole, B has been doing awesome. He is working pretty much from 8 am until 6 pm almost every day. Whew. We're fading naps, putting more restrictions on him, more demands and the list goes on. I'd say he's taking it in stride more than most people would - myself included. But today has been one of those days. LOTS of crying and lots of time lost. I sat in the basement with 3 therapists for what seemed like a lifetime this morning while we waited for him to calm down in his bed. This is the part that really sucks. Thank goodness the good days by far outnumber the bad ones. And he really is making some serious progress. Today, he had a really good night's sleep, was up with some downtime before therapy started, ate a big breakfast and should have been in great shape. Yesterday, he came off a really bad night's sleep, was literally pulled out of bed after the therapists arrived AND it was Monday. Yesterday was awesome and today is terrible. I should have learned a long time ago that you can't manipulate this whole parenting gig.

I took a break in between writing this - I seem to never complete an entire task uninterrupted. And, B is doing great again. The day is looking up.

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