Happy Easter

We had a nice day off today. It was our first Sunday without a full day of therapy in quite some time. Good friends of ours graciously invited us for an Easter lunch. Since B spends SO much time in therapy, these outings are very rare and I am always nervous about how he'll do. He was SO excited to get to go and generally pretty over-the-top excited the whole time we were there. Both boys sat through the meal - I call that success. It is tough to see B around other "typical" kids though. He wants to be with them but really doesn't know how. So, he spends a lot of time around them and a lot of time doing his own thing entirely. It's not an easy thing for a parent to watch.

We also had a pretty tough ending to the day. Recently, B has started coming out of his room when we put him to bed (ahhh - the freedom of a big boy bed). Yesterday, we bought one of those door covers that makes it so he can't open the door. At first, he thought it was hilarious and then it quickly turned to a gut-wrenching cry. I didn't think we'd have to cry it out quite so late in the game but here we are again. Fortunately, it only lasted about 15-20 minutes and ended with him soundly sleeping in his bed (vs. passed out next to the door as I feared). Tough love. We had to do it or we'll be in this pattern of him getting up every night which isn't good for any of us. I just hate that I can't just explain to him that he has to stay in his room. I hope it only takes one night of this.

Tomorrow is a big day for us. April 20th marked the 1-year anniversary of B's diagnosis so it's time for an annual assessment. We have a diagnostic assessment/evaluation tomorrow from 1-4 with a new provider. I'm a little nervous and anxious about it. I never know what to expect. I'll try to update tomorrow with their findings.