My son was diagnosed with Autism at age 2. Ten years in and I've learned how complex Autism truly is. This is our version. Challenging, crazy and beautiful.
xmas 2013
Sunday, January 20, 2013
Sick?
B. has been under the weather a lot recently. Boy do I hate it. I hate when my kids are sick. And what I hate more is the uncertainty and doubt about whether they truly are sick enough to miss school or therapy. I always tend to think they are faking it or making it out to be worse than it is. I don't know why - I don't particularly remember trying to fake sick as a kid. But for some reason, with my older son, I am always second guessing. Does he just want to stay home? Do I make it too easy on him when he says he's sick? I just don't want it to become a habit for him to say he's sick when he wants to get out of something. So, recently, he (6-year old big brother) said he had a tummy ache and couldn't go to school. After MUCH deliberating and negotiating, I got him to agree to "try" going to kindergarten and that I'd come get him immediately if he was really sick. So, we drove to school and started walking in. He broke down in tears and thanked me profusely when I agreed to bring him home. Not 2 hours later, he started the first episode of stomach flu puking. Bad call, Mom. I should have just let him stay home from the beginning.
With B, it's even harder. I can never tell if he is sick or if he just doesn't want to work. Unlike his big brother, he doesn't try to "milk" it. He has worked through lots of different sicknesses like a trooper. Which honestly is far worse than if he were faking it. He can't tell me and I really just never know if he's truly sick. I'm always hesitant to cancel therapy and it often results in a lot of guilt after we make a poor little sick dude work through it all day. One of my biggest mom guilt issues is when I took him on an airplane TWICE with a WEEK in between while the poor kid had a double ear infection. He had just gotten tubes in - I didn't think ear infections were possible -and I just couldn't figure out why he was such a mess.
Last week, B had a rough day. He was crying and screaming a LOT. But in between, he was seemingly so much better than fine - running around and laughing like a maniac. So we kept going. But those down times were really down. He cried in a way we hadn't heard before. The worst part was after he went to bed. Hubby and I heard him cry out in his room (a first) and both of us ran in thinking he had hurt himself. He just lay there crying and didn't want either of us to touch him. We brought him out to the couch and he ended up falling asleep on my lap. It was heartbreaking. What if something was really wrong? Did we need to take him to the dr.? The emergency room? I have never been more desperate for him to be able to talk.
Considering the very limited language he has, B actually does a pretty good job of getting his point across. Except when it comes to things like this. And this is the hard stuff. It kills me knowing how frustrating it must be for him to be so miserable and so incapable of telling us. We do what we can. And I take comfort in his sweet little voice saying "you're ok" over and over as he snuggles in. He may not be able to tell me what's wrong but he does find a way to let me comfort him as much as I can.
Monday, January 7, 2013
Carefree
At 3:00 this morning, I heard one of the kids in the monitor. Seems like we should be past baby monitors at age 5 and 6 but their rooms are a floor below us and I'm paranoid. I get a lot less sleep because of them. It wasn't a frantic "MOM" so I knew it was B. He has never, in 5 years, called out for me - not even when he's sick or hurt. I wonder if he ever will. What I heard instead was laughter - deep, belly laughter. I didn't listen for long but I know from experience that it would go on for as long as an hour or two. B was having a little party in there. In his bed. Completely by himself. Blissfully happy. This is B in a nutshell. This is what he does when he is alone in his head.
This is one of the differences between B and the rest of us. It's one that actually makes me a little envious. When I wake up in the middle of the night - it's not laughter that keeps me awake. It's the endless list of worries and anxieties and stress. Even at the young age of 6, my older son has his fair share of worries, anxieties and fears. And as adults, we spend far too much of our time on them. Not B. When left to his own devices, he doesn't have a care in the world. He's honestly the happiest kid you'll ever meet. I've been told this on numerous occasions by a variety of people... most recently by the guy checking our bags at the airport. He literally cracks himself up. And oh that giggle. I've said it before but it is the most infectious thing you'll ever hear. If there is an upside to Autism, this is it. At least in our case. Autism can take many forms - aggression, self injurious behavior, isolation, depression etc. I am thankful everyday that for us it manifests itself in this way. One blissfully happy kid with an amazing smile, an amazing laugh and immeasurable joy.
This is one of the differences between B and the rest of us. It's one that actually makes me a little envious. When I wake up in the middle of the night - it's not laughter that keeps me awake. It's the endless list of worries and anxieties and stress. Even at the young age of 6, my older son has his fair share of worries, anxieties and fears. And as adults, we spend far too much of our time on them. Not B. When left to his own devices, he doesn't have a care in the world. He's honestly the happiest kid you'll ever meet. I've been told this on numerous occasions by a variety of people... most recently by the guy checking our bags at the airport. He literally cracks himself up. And oh that giggle. I've said it before but it is the most infectious thing you'll ever hear. If there is an upside to Autism, this is it. At least in our case. Autism can take many forms - aggression, self injurious behavior, isolation, depression etc. I am thankful everyday that for us it manifests itself in this way. One blissfully happy kid with an amazing smile, an amazing laugh and immeasurable joy.
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